160 million rubles were raised for a sick child in Dagestan.
Treating a boy from the Suleiman-Stalsky district with Duchenne muscular dystrophy requires 230 million rubles. 70 million rubles were raised in six months, and another 160 million were collected in five days.
Treating a 10-year-old boy from the village of Kasumkent with Duchenne muscular dystrophy has raised 160 million rubles in five days, Novoye Delo reports.
The fundraising campaign was organized by the boy's family, the Pure Heart Foundation, and activists. A total of 230 million rubles are needed for his treatment, 70 million of which have already been raised.
The family from the Suleiman-Stalsky district lives solely on a disability pension, benefits, and the income of the head of the family as a mechanic, the Pure Heart Foundation reported on its website. "Mansur's skeletal structure has already changed and he has developed scoliosis. An injection of the drug Elevidis, which a clinic in Dubai is ready to administer, can halt the progression of the disease," the publication states.
According to information on the Instagram* page dedicated to the fundraiser, funds were collected online, with donations made to the cards of the boy's immediate family members and to PayPal. Offline collections were also held; one published video shows a street fundraiser. The fundraiser's organizers reported that the funds are coming not only from Dagestan and neighboring republics, but also from all over Russia and the CIS countries.
The Suleiman-Stalsky District Administration previously announced a charity football match, the proceeds of which will go toward the boy's treatment.
The fundraiser was opened in June 2025, when the family had just begun raising the sum of 230 million, Chernovik reported on June 20, 2025, when the family had just begun raising money for treatment.
Duchenne disease (Duchenne muscular dystrophy) is diagnosed in approximately one in 3,500 to 4,000 boys and is characterized by progressive muscular dystrophy that manifests in early childhood and leads to the inability to walk as early as the second decade of life and, in most cases, to death in "The disease is caused by a change (mutation, most often a deletion or duplication) in the dystrophin gene, located on the X chromosome. The gene that causes the disease is located on the X chromosome, and therefore the disease is much more pronounced in boys, since they only have one X chromosome," he noted. According to him, this is a very rare and narrow specialization among doctors.
Translated automatically via Google translate from https://www.kavkaz-uzel.eu/articles/419595