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18:57, 22 March 2026

The second fundraising campaign for the treatment of a child with Duchenne muscular dystrophy has been closed since the beginning of the year in Dagestan.

During Ramadan, a fundraising campaign to raise 230 million rubles for the treatment of a nine-year-old boy from Dagestan with Duchenne muscular dystrophy closed. Previously, on January 1, 2026, a fundraising campaign for another child with the same diagnosis also closed.

As reported by the "Caucasian Knot," by March 16, 208 million rubles had been raised for the treatment of the boy with Duchenne muscular dystrophy. A total of 230 million rubles are needed for the Elevidis injection. The fundraiser's organizers reported that he had not yet received assistance under the state program and expressed hope that the fundraiser would be completed before the end of Ramadan.

The "Caucasian Knot" also reported that 230 million rubles were needed for the treatment of a nine-year-old boy from the Suleiman-Stalsky District with Duchenne muscular dystrophy. They raised 70 million in six months, and another 160 million were raised in five days, closing the fundraiser on January 1.

Residents of Dagestan raised 230 million rubles for the treatment of a nine-year-old boy, the Russian State Military Commission of Dagestan reported. The boy suffers from a rare genetic disease, Duchenne muscular dystrophy, which causes gradual muscle atrophy. The fundraiser took place during the Muslim holy month of Ramadan. Bloggers, volunteers, prominent businessmen, and ordinary residents of Dagestan, as well as the North Caucasus and the CIS countries, came to the rescue, the television company reported.

"This is a very large sum; we didn't believe we'd be able to raise it so quickly. We thought it would take months or years, so we didn't immediately decide to start collecting," Sapa Kavkaz quotes the boy's mother as saying.

The largest number of funds were raised in Makhachkala, Khasavyurt, and Derbent. Residents of other cities—Astrakhan, Kislovodsk, Cherkessk, Nalchik, and even Novy Urengoy—also contributed.

Duchenne disease (Duchenne muscular dystrophy) is diagnosed in approximately one in 3,500 to 4,000 boys and is characterized by progressive muscular dystrophy that manifests itself in early childhood and leads to the inability to walk in the second decade of life and, in most cases, to death in the second or third decade of life, pediatrician Evgeny Zolotov previously told a Caucasian Knot correspondent.

"The disease is caused by a change (mutation, most often a deletion or duplication) in the dystrophin gene, located on the X chromosome. The gene that causes the disease is located on the X chromosome, and therefore the disease is much more pronounced in boys, since they have only one X chromosome." " he noted. According to him, this is a very rare and narrow specialization among doctors.

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Translated automatically via Google translate from https://www.kavkaz-uzel.eu/articles/421818

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